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References

Find Empathy Education is backed by Research

Series One

Multiple Sclerosis

  1. Ramagopalan, S. V., Dobson, R., Meier, U. C., & Giovannoni, G. (2010). Multiple sclerosis: risk factors, prodromes, and potential causal pathways. The Lancet. Neurology, 9(7), 727–739. https://doi-org.proxy1.library.jhu.edu/10.1016/S1474-4422(10)70094-6
  2. Degelman, M. L., & Herman, K. M. (2017). Smoking and multiple sclerosis: A systematic review and meta-analysis using the Bradford Hill criteria for causation. Multiple sclerosis and related disorders, 17, 207–216. https://doi-org.proxy1.library.jhu.edu/10.1016/j.msard.2017.07.020
  3. Thompson, A. J., Banwell, B. L., Barkhof, F., Carroll, W. M., Coetzee, T., Comi, G., Correale, J., Fazekas, F., Filippi, M., Freedman, M. S., Fujihara, K., Galetta, S. L., Hartung, H. P., Kappos, L., Lublin, F. D., Marrie, R. A., Miller, A. E., Miller, D. H., Montalban, X., Mowry, E. M., … Cohen, J. A. (2018). Diagnosis of multiple sclerosis: 2017 revisions of the McDonald criteria. The Lancet. Neurology, 17(2), 162–173. https://doi-org.proxy1.library.jhu.edu/10.1016/S1474-4422(17)30470-2
  4. Celius, E. G., Thompson, H., Pontaga, M., Langdon, D., Laroni, A., Potra, S., Bharadia, T., Yeandle, D., Shanahan, J., van Galen, P., Alexandri, N., & Kesselring, J. (2021). Disease Progression in Multiple Sclerosis: A Literature Review Exploring Patient Perspectives. Patient preference and adherence, 15, 15–27. https://doi-org.proxy1.library.jhu.edu/10.2147/PPA.S268829
  5. Alschuler KN, Whibley D, Kratz AL, Jensen MP, Wundes A, von Geldern G, Qian P, Bombardier CH, Ehde DM. Quality of life in individuals newly diagnosed with multiple sclerosis or clinically isolated syndrome. J Neurol. 2021 Oct 19. doi: 10.1007/s00415-021-10842-w. Epub ahead of print. PMID: 34665331.
  1. Menzin, J., Caon, C., Nichols, C., White, L. A., Friedman, M., & Pill, M. W. (2013). Narrative review of the literature on adherence to disease-modifying therapies among patients with multiple sclerosis. Journal of managed care pharmacy : JMCP, 19(1 Suppl A), S24–S40. https://doi-org.proxy1.library.jhu.edu/10.18553/jmcp.2013.19.s1.S24
  2. Johnson, K. M., Zhou, H., Lin, F., Ko, J. J., & Herrera, V. (2017). Real-World Adherence and Persistence to Oral Disease-Modifying Therapies in Multiple Sclerosis Patients Over 1 Year. Journal of managed care & specialty pharmacy, 23(8), 844–852. https://doi-org.proxy1.library.jhu.edu/10.18553/jmcp.2017.23.8.844
  3. Thach, A. V., Brown, C. M., Herrera, V., Sasane, R., Barner, J. C., Ford, K. C., & Lawson, K. A. (2018). Associations Between Treatment Satisfaction, Medication Beliefs, and Adherence to Disease-Modifying Therapies in Patients with Multiple Sclerosis. International journal of MS care, 20(6), 251–259. https://doi-org.proxy1.library.jhu.edu/10.7224/1537-2073.2017-031
  4. Ben-Zacharia, A., Adamson, M., Boyd, A., Hardeman, P., Smrtka, J., Walker, B., & Walker, T. (2018). Impact of Shared Decision Making on Disease-Modifying Drug Adherence in Multiple Sclerosis. International journal of MS care, 20(6), 287–297. https://doi-org.proxy1.library.jhu.edu/10.7224/1537-2073.2017-070
  1. Khan, O., Williams, M. J., Amezcua, L., Javed, A., Larsen, K. E., & Smrtka, J. M. (2015). Multiple sclerosis in US minority populations: Clinical practice insights. Neurology. Clinical practice, 5(2), 132–142. https://doi-org.proxy1.library.jhu.edu/10.1212/CPJ.0000000000000112
  2. Bhattarai, J. ‘., Bentley, J., Morean, W., Wegener, S. T., & Pollack Porter, K. M. (2020). Promoting equity at the population level: Putting the foundational principles into practice through disability advocacy. Rehabilitation psychology, 65(2), 87–100. https://doi-org.proxy1.library.jhu.edu/10.1037/rep0000321
  3. Wang, Y., Tian, F., Fitzgerald, K. C., Bhattarai, J. J., Naismith, R. T., Hyland, M., Calabresi, P. A., & Mowry, E. M. (2020). Socioeconomic status and race are correlated with affective symptoms in multiple sclerosis. Multiple sclerosis and related disorders, 41, 102010. https://doi-org.proxy1.library.jhu.edu/10.1016/j.msard.2020.102010
  1. Halstead EJ, Leavitt VM, Fiore D, Mueser KT. A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners. Mult Scler J Exp Transl Clin. 2020 Aug 21;6(3):2055217320941250. doi: 10.1177/2055217320941250. PMID: 32913660; PMCID: PMC7444140.
  2. Hughes, AJ, Botanov, Y, Beier, M. Dialectical Behavior Therapy Skills Training for Individuals with Multiple Sclerosis and their Support Partners: A Pilot Randomized Controlled Trial. Multiple Sclerosis and Related Disorders, 2022, 103481, ISSN 2211-0348, https://doi.org/10.1016/j.msard.2021.103481.
  3. Pakenham KI. The positive impact of multiple sclerosis (MS) on carers: associations between carer benefit finding and positive and negative adjustment domains. Disabil Rehabil. 2005 Sep 2;27(17):985-97. doi: 10.1080/09638280500052583. PMID: 16096252.
  1. Kalb, R., Feinstein, A., Rohrig, A., Sankary, L., & Willis, A. (2019). Depression and Suicidality in Multiple Sclerosis: Red Flags, Management Strategies, and Ethical Considerations. Current neurology and neuroscience reports, 19(10), 77. https://doi-org.proxy1.library.jhu.edu/10.1007/s11910-019-0992-1
  2. Schorr EM, Kurz D, Rossi KC, Zhang M, Yeshokumar AK, Jette N, Dhamoon MS. Depression readmission risk is elevated in multiple sclerosis compared to other chronic illnesses. Mult Scler. 2022 Jan;28(1):139-148. doi: 10.1177/13524585211051316. Epub 2021 Nov 17. PMID: 34787004.
  3. Feinstein A, Pavisian B. Multiple sclerosis and suicide. Mult Scler. 2017 Jun;23(7):923-927. doi: 10.1177/1352458517702553. Epub 2017 Mar 22. PMID: 28327056.
  4. Minden SL, Feinstein A, Kalb RC, Miller D, Mohr DC, Patten SB, Bever C Jr, Schiffer RB, Gronseth GS, Narayanaswami P; Guideline Development Subcommittee of the American Academy of Neurology. Evidence-based guideline: assessment and management of psychiatric disorders in individuals with MS: report of the Guideline Development Subcommittee of the American Academy of Neurology. Neurology. 2014 Jan 14;82(2):174-81. doi: 10.1212/WNL.0000000000000013. Epub 2013 Dec 27. PMID: 24376275; PMCID: PMC3897434.
  1. Molton, I. R., Koelmel, E., Curran, M., von Geldern, G., Ordway, A., & Alschuler, K. N. (2019). Pilot intervention to promote tolerance for uncertainty in early multiple sclerosis. Rehabilitation psychology, 64(3), 339–350. https://doi-org.proxy1.library.jhu.edu/10.1037/rep0000275
  1. Benedict, R., DeLuca, J., Enzinger, C., Geurts, J., Krupp, L. B., & Rao, S. M. (2017). Neuropsychology of Multiple Sclerosis: Looking Back and Moving Forward. Journal of the International Neuropsychological Society : JINS, 23(9-10), 832–842. https://doi-org.proxy1.library.jhu.edu/10.1017/S1355617717000959

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